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難病ねじ子・Swedish and Japanese ・OriHimeパイロット港区役所内にて
@Axen_
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難病ねじ子・Swedish and Japanese ・OriHimeパイロット港区役所内にて
@Axen_
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成人still→下垂体前葉機能低下症→MG(Ⅳb)&壊死性ミオパチ,間質性肺炎→SPIDDM→sjogren→2021/9MGクリーゼ,HOT&NPPV開始,2021/12毎月PE+ステロイドパルス+IVIg,2022/2SAP開始(DM),溶血性貧血,ウィフガートIV開始(MG),INポート,WHILL
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